TRACKS

EDUCATIONAL VIDEOS

 

Another big conversation. Warriors and our caregivers experience higher rates of depression, anxiety, and PTSD, than the general population. It’s ok to not be ok. Let’s talk about it. Share our experiences, coping mechanisms at home, and where to find resources to help. 

Physical Intensity and the Sickle Cell Trait Warrior

Dr. Tomia Austin

Trait & RMC: The Kidney Connection

Ritchie Johnson

Young Adults: Goal Setting & Achieving

Otha Mobbs

In this talk we will be discussing goal setting and achieving. I put together a presentation outlining, step by step how to formulate a goal and how to work through mental blockages. Lastly I introduced my 90 Goal Getter planner that will help you keep track of your goals and affirmations.

Young Adults: The Language of Pain

Lisa Rose

Young Adults: Money Matters for Young Warriors: Intro to Personal Finance for Young SCD Warriors

Philip Okwo

Men's Track: Conflict Resolution for Men

Clayton Andrews

Men's Track: Men and Mental Health

Clayton Andrews

Men's Track: Priapism

DeMitrious Wyant

The ins and out of priapism, what it is, how it affects the male, what can you do to help, and when you should seek medical attention.

Program Overview & Learning Objectives

PROGRAM OVERVIEW

This is an educational conference planned by, and for, individuals living with sickle cell disease, our caregivers, to address issues that are most relevant to the sickle cell community. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Educational content will be provided in the form of pre-recorded, video content. Sickle cell stakeholder groups are then invited to engage in Community Conversations to discuss the top prioritized subject matter themes. The recorded educational content will serve to provide an overview of a wide array of topics related to the subject matter of the Community Conversation. Healthcare providers, industry, and other stakeholders are invited to join patients and caregivers in discussions that shape sickle cell research, education, policy, advocacy, and awareness. Patients and caregivers are the true experts of our own bodies, perceptions, and experiences. We are turning the table and invite all others to come and learn from us – Sickle Cell Citizen Scientists.

 

 

TARGET AUDIENCE

The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.

LEARNING OBJECTIVES

After completing this course, participants should be able to:

  • Review the most common complications of sickle cell disease
  • Discuss curative options and therapies
  • Review alternative and complimentary treatment options
  • Understand new drug therapies for sickle cell disease!