EDUCATIONAL VIDEOS

 

What exactly is happening when we go into sickle cell crisis? We know about the sickle mutation that causes the hemoglobin to stick together causing the red blood cell to become sickle-shaped. Let’s talk about this and everything else.  *This will be the launch to a Warrior University class series to discuss the science of sickle cell.

Vitamins, Supplents, Folic Acid - Why

Dr. Lametra Scott

Join pharmacist warrior Dr. Lametra Scott as she walks us through the A to Z of vitamins, minerals, and supplements and their role on maintaining optimal health.

Sickle Cell Disease: Beyond the Red Cell

Dr. James Eckman

Dr. James Eckman, the Sickle Cell Consortium 2019 Healthcare Hero, explains the mechanism of the vaso-occlusive crisis.

The Role of Fetal Hemoglobin in Sickle Cell Disease

Dr. Peter Lane

Fetal hemoglobin plays a very important role in preventing sickling for warriors lucky enough to retain high fetal hemoglobin later in life. Dr. Peter Lane explains why.

Program Overview & Learning Objectives

PROGRAM OVERVIEW

This is an educational conference planned by, and for, individuals living with sickle cell disease, our caregivers, to address issues that are most relevant to the sickle cell community. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Educational content will be provided in the form of pre-recorded, video content. Sickle cell stakeholder groups are then invited to engage in Community Conversations to discuss the top prioritized subject matter themes. The recorded educational content will serve to provide an overview of a wide array of topics related to the subject matter of the Community Conversation. Healthcare providers, industry, and other stakeholders are invited to join patients and caregivers in discussions that shape sickle cell research, education, policy, advocacy, and awareness. Patients and caregivers are the true experts of our own bodies, perceptions, and experiences. We are turning the table and invite all others to come and learn from us – Sickle Cell Citizen Scientists.

 

 

TARGET AUDIENCE

The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.

LEARNING OBJECTIVES

After completing this course, participants should be able to:

  • Review the most common complications of sickle cell disease
  • Discuss curative options and therapies
  • Review alternative and complimentary treatment options
  • Understand new drug therapies for sickle cell disease!