GENERAL EDUCATION & OTHER CONTENT

EDUCATIONAL VIDEOS

 

Another big conversation. Warriors and our caregivers experience higher rates of depression, anxiety, and PTSD, than the general population. It’s ok to not be ok. Let’s talk about it. Share our experiences, coping mechanisms at home, and where to find resources to help. 

CARISMA

Dr. Charles Jonassaint

CRISIS: The Film (Trailer)

SCCC

The Future of Sickle Cell Disease

Be The Match

Exploring the Future of Sickle Cell Disease

Be The Match

What are Blood Transfusions? (Animation)

SCCC

Understanding Your Blood (Animation)

SCCC

Transfusion Reactions (Animation)

SCCC

Testing, Tracking, and Knowing Your Normal (Animation)

SCCC

All About Iron (Animation)

SCCC

Program Overview & Learning Objectives

PROGRAM OVERVIEW

This is an educational conference planned by, and for, individuals living with sickle cell disease, our caregivers, to address issues that are most relevant to the sickle cell community. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Educational content will be provided in the form of pre-recorded, video content. Sickle cell stakeholder groups are then invited to engage in Community Conversations to discuss the top prioritized subject matter themes. The recorded educational content will serve to provide an overview of a wide array of topics related to the subject matter of the Community Conversation. Healthcare providers, industry, and other stakeholders are invited to join patients and caregivers in discussions that shape sickle cell research, education, policy, advocacy, and awareness. Patients and caregivers are the true experts of our own bodies, perceptions, and experiences. We are turning the table and invite all others to come and learn from us – Sickle Cell Citizen Scientists.

 

 

TARGET AUDIENCE

The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.

LEARNING OBJECTIVES

After completing this course, participants should be able to:

  • Review the most common complications of sickle cell disease
  • Discuss curative options and therapies
  • Review alternative and complimentary treatment options
  • Understand new drug therapies for sickle cell disease!