This conversation will focus on sharing our experiences with some of the complications of sickle cell disease. What are the prevalent complications? How can we recognize them and what do we do about it? Patients and caregivers will share their experiences.

From Menstrual Cycles to Menopause: Health Concerns for the Warrior Woman

Dr. Lydia Pecker

Sickle Cell Retinopathy: Future Directions

Dr. Adrienne Scott

The importance of seeing an eye doctor every year is discussed along with how Sickle Cell effects a warrior’s eyes. An in-depth look at Sickle Retinopathy and what it is.


DeMitrious Wyant

The ins and out of priapism, what it is, how it affects the male, what can you do to help, and when you should seek medical attention.

The Sickle Stroke Screen

Dr. Shannon Phillips

New educational initiative to enhance transcranial doppler (TCD) implementation: results from the DISPLACE study.


Dr. James Eckman

Program Overview & Learning Objectives


This is an educational conference planned by, and for, individuals living with sickle cell disease, our caregivers, to address issues that are most relevant to the sickle cell community. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Educational content will be provided in the form of pre-recorded, video content. Sickle cell stakeholder groups are then invited to engage in Community Conversations to discuss the top prioritized subject matter themes. The recorded educational content will serve to provide an overview of a wide array of topics related to the subject matter of the Community Conversation. Healthcare providers, industry, and other stakeholders are invited to join patients and caregivers in discussions that shape sickle cell research, education, policy, advocacy, and awareness. Patients and caregivers are the true experts of our own bodies, perceptions, and experiences. We are turning the table and invite all others to come and learn from us – Sickle Cell Citizen Scientists.




The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.


After completing this course, participants should be able to:

  • Review the most common complications of sickle cell disease
  • Discuss curative options and therapies
  • Review alternative and complimentary treatment options
  • Understand new drug therapies for sickle cell disease!