Another big conversation. Warriors and our caregivers experience higher rates of depression, anxiety, and PTSD, than the general population. It’s ok to not be ok. Let’s talk about it. Share our experiences, coping mechanisms at home, and where to find resources to help.
Dr. Charles Jonassaint
Sickle cell warriors and caregivers are diagnosed with anxiety and depression more than the general population. Dr. Charles Jonassaint discusses.
In this session, learn how Sickle Cell affects Male Warriors and their Mental Health.
Sickle Cell and Palliative Care is a brief introduction to Pning, etc. Palliative Care that dispels myths and explores the benefits of Palliative Care for those living with Sickle Cell. Key Palliative Concepts are reviewed, including Advance Care Plan
Carley Cole Cavins
The definition, symptoms, and triggers of ,PTSD are all discussed in this session. Chronic Illness-induced PTSD, how is it different from PTSD, experience, impact, managing and treatment is also discussed in the session.
Program Overview & Learning Objectives
This is an educational conference planned by, and for, individuals living with sickle cell disease, our caregivers, to address issues that are most relevant to the sickle cell community. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Educational content will be provided in the form of pre-recorded, video content. Sickle cell stakeholder groups are then invited to engage in Community Conversations to discuss the top prioritized subject matter themes. The recorded educational content will serve to provide an overview of a wide array of topics related to the subject matter of the Community Conversation. Healthcare providers, industry, and other stakeholders are invited to join patients and caregivers in discussions that shape sickle cell research, education, policy, advocacy, and awareness. Patients and caregivers are the true experts of our own bodies, perceptions, and experiences. We are turning the table and invite all others to come and learn from us – Sickle Cell Citizen Scientists.
The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.
After completing this course, participants should be able to: