2020 Registration

Registration

The sickle cell community is invited to join us for the 7th Annual Sickle Cell Patient and Family (Digital) Educational Symposium (The Warriors Convention). We welcome all patients, caregivers, healthcare providers, research scientists, and others, to join us as we present “Citizen Scientist: Harnessing the Power of the Patient & Caregiver Voice”.

This year, ALL sickle cell warriors and caregivers are automatically awarded the scholarship registration rate of $15. There is NO application. Participants attending the Community Lunch and Learns will be invited to enjoy lunch on us as we educate and empower each other. We do, however, request that all Warrior and Caregiver participants plan to attend the main Community Lunch and Learn sessions, along with 50% of other sessions. This year’s Registration Kit will be digital and it will be emailed to all participants. This Digital Registration Packet will include the program book, access to the website and mobile app, and digital copies of multiple patient-powered educational resources. Those who check-in each morning will also receive instructions to place your lunch order (if available in your area). A Physical Registration Kit will be sent to all patients and caregivers. This is FREE for patients and caregivers. An option to purchase a physical registration kit is provided as an add-on for all other ticket types.

REGISTRATION INSTRUCTIONS:

 
STEP 1:  Select your ticket type.  
STEP 2:  If you are a family of 5 or more, email Doris Bailey at Finance@sicklecellconsortium.org to pay the flat rate of $75 and then register all members of your family.  
STEP 3:  Select your add-on sessions
STEP 4:   Answer registration questions for each person you are registering.  


To register, first select your Ticket Type, and then select the “add on” sessions that you plan to attend.

The first add-on is the Physical Registration Kit. This is NOT a required add-on for patients and caregivers. The Physical Registration Kit will be shipped free to ALL sickle cell warriors and our caregivers who register no later than November 9, 2020.

For all other ticket types, a physical registration kit, to complement the digital kit, will be mailed to participants who select this add-on option and register no later than Friday, November 6, 2020. Physical registration packets can be added to your check-out cart separately and include the program book, multiple patient-powered educational resources, and other registration materials (such as water tumbler, face mask, etc.). Additional items will be mailed based on sessions chosen during registration for those who choose the physical registration add-on. THE PHYSICAL REGISTRATION KIT IS FREE TO SICKLE CELL PATIENTS AND CAREGIVERS ONLY.

We have planned a robust and engaging agenda full of education, empowerment, and fun. There are mutliple sessions that we require participants to select during check-out. Those who opt to add the physical registration kit will be mailed additional items to compliment several of the sessions. These sessions can be enjoyed without the purchase of the physical registration kit.

After you have selected all of your add-ons, you will be directed to complete the registration question where you will have an opportunity to identify your specific track. You may select all that apply. This year, we are bringing back the Children’s Track, the Young Adult Track, The Men Track, and the Trait Track. All of this is in addition to the General Track sessions.

*International participants will only receive the digital registration package. Unfortunately, we will be unable to ship outside of the United States.

 

Ticket Types

Patient & Caregiver Registration Scholarship
This ticket type is available for all warriors and caregivers of all ages who may require a discounted registration rate.All patients and caregivers who register prior to the November 6th deadline will recieve a registration kit in the mail. Those who register after this deadline may not receive their kit in time for the meeting.

**Family Registration Scholarship
Sickle cell patient and caregiver families registering five or more members of a single family may opt to register at a flat rate of $75. No family will need to pay more than $75 to register all members of that single family. If you desire this rate DO NOT REGISTER YET. Contact Doris Bailey at Finance@sicklecellconsortium.org to access the family rate option.”

Nurses & Social Workers
This ticket type is for all nurses (RN, LPN, BSN, etc) and licensed social workers
Other Healthcare Providers & Research Scientists
This ticket type is for medical providers (MD) and research scientists (PhD)
General Attendees
This ticket type is for all other participants
Industry
This ticket type is for all pharmaceutical and medical technology industry companies or corporations.

 

 

Add-Ons

Special events must be added to your cart. Please select ONLY those special events that you plan to attend. A copy of the agenda can be found at www.sicklecellconvention.org. The Physical Registration Kit is FREE to all sickle cell warriors and caregivers. MUST register by November 9th to receive the kit in the mail by the start of the Convention. The add-on is available for all other ticket types.

Physical Registration Kit (The physical registration kit is FREE to all patients and caregivers. If you are a sickle cell warrior or the caregiver of a warrior, you are not required to pay for this add-on. )


The physical registration kit will be mailed to participants who register no later than Friday, November 10th. This will include the program book, other educational materials, registration items, and special event items (based on agenda selections). The physical registration kit is FREE for patients and caregivers.

IF YOU ARE A SICKLE CELL PATIENT OR CAREGIVER DO NOT ADD THIS TO YOUR CART

$20
Wednesday, November 18, 2020
Pre-Con Networking Event
Join us as we get to know other participants with both group and one-on-one conversations. Collect engagement points for a chance to win fun prizes.
Wednesday, November 18th | 12pm – 3pm PST | 3pm – 6pm EST
$0
Thursday, November 19, 2020
Morning Wellness
Hosted by Carol’s Promise

Participants attending the Community Lunch and Learns will be invited to enjoy lunch on us as we participate in an important session hosted by a Convention sponsor.
Thursday, November 19th | 8-9 am PST | 11-12 pm EST

$0
Community Lunch and Learn
Participants attending the Community Lunch and Learns will be invited to enjoy lunch on us as we participate in an important session hosted by a Convention sponsor.
Thursday, November 19th | 12-1 pm PST | 3-4 pm EST
$0
Healthy Eating with Warriors
Join warrior chefs and dieticians as they prepare a healthy meal and chat about healthy eating and nutrients with sickle cell disease. Interested participants will receive a recipe card and shopping list to cook along at home.
Thursday, November 19th | 2pm – 3pm PST | 5pm – 6pm EST
$0
Friday, November 20, 2020
Morning Wellness
Hosted by Carol’s Promise

Participants attending the Community Lunch and Learns will be invited to enjoy lunch on us as we participate in an important session hosted by a Convention sponsor.
Friday, November 20th | 8-9 am PST | 11-12 pm EST

$0
Community Lunch and Learn
Participants attending the Community Lunch and Learns will be invited to enjoy lunch on us as we participate in an important session hosted by a Convention sponsor.
Friday, November 20th | 11 am -12 pm PST | 2 pm -4 pm EST
$0
Make-Up & Advocacy
Join warrior make-up artists as we learn the tips to make-up artistry and discuss advocacy with fellow warriors. Interested participants will receive instructions and shopping list to participate from home.
Friday, November 20th | 12 pm – 1pm PST | 3pm-4pm EST
*can only select either Make-up or Gaming Activity on this day/time
$0
Gaming & Advocacy
Join other warrior gamers as we play together and discuss advocacy. Interested participants will receive the info to join the game.
Friday, November 20th | 12 pm – 1pm PST | 3pm-4pm EST
*can only select either Make-up or Gaming Activity at this day/time
$0
Young Adult Kickback: Vision Board Party
For young adults ONLY. Join other young adults age 14 – 19 to encourage and empower each other during a Vision Board Party.
Saturday, November 20th | 2 pm -3 pm PST | 5 pm – 6 pm EST
$0
Women ONLY – Selfcare Pajama Jam
This Warrior After Dark session is for women only. Join other warrior women for this self-care themed pajama jam. Best pajamas wins a special prize.
Friday, November 20th | 7pm -9pm PST | 10pm-12pm EST
$0
Men ONLY – Sickle M.A.N. Networking & Mentoring
This Warrior After Dark is for men only. Join other male warriors and caregivers to network, bond, and discuss male mentoring.
Friday, November 20th | 7pm -9pm PST | 10pm-12pm EST
$0
Saturday, November 21, 2020
Morning Wellness
Hosted by Carol’s Promise

Participants attending the Community Lunch and Learns will be invited to enjoy lunch on us as we participate in an important session hosted by a Convention sponsor.
Saturday, November 21st | 8-9 am PST | 11-12 pm EST

$0
Community Lunch and Learn
Participants attending the Community Lunch and Learns will be invited to enjoy lunch on us as we participate in an important session hosted by a Convention sponsor.
Saturday, November 21th | 11 am -12 pm PST | 2 pm -4 pm EST
$0
Community Paint & Chat
During this workshop we will collectively participate in a Bob Ross moment as we paint with the tutorial of a warrior artist. Participants will receive paints, brushes, a canvas, and instructions.
Saturday, November 21st | 2pm-3pm PST | 5pm-6pm
All participants will receive materials to create your own painting
$20
Family Game Night
Join warriors and caregivers from all over the country for a night of games, fun, and prizes. First solve the case of “The Messy Death of the Tidy Millionaire” and then join us many other fun games.
Saturday, November 21st | 6pm-9pm PST | 9pm-midnight
All participants will receive materials to create your own painting
$20

Choose Your Tickets and Add-Ons Below:

Program Overview & Learning Objectives

PROGRAM OVERVIEW

This is an educational conference planned by and for consumers with sickle cell disease to address issues that are most relevant to consumers. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Speakers will discuss issues related to stress management, financial management, transition from pediatric to adult care, caregiver respite, rights & responsibilities in the workplace, men only sessions, women-only sessions, and other interesting topics.

 

 

TARGET AUDIENCE

The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.

LEARNING OBJECTIVES

After completing this course, you should be able to:

  • Review the most common complications of sickle cell disease
  • Discuss stress management techniques for sickle cell disease
  • Discuss chronic transfusion and sickle cell disease
  • Understand new drug therapies for sickle cell disease!