This is an educational conference planned by and for consumers with sickle cell disease to address issues that are most relevant to consumers. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Speakers will discuss issues related to stress management, financial management, transition from pediatric to adult care, caregiver respite, rights & responsibilities in the workplace, men only sessions, women-only sessions, and other interesting topics.
The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.
After completing this course, you should be able to:
Review the most common complications of sickle cell disease
Discuss stress management techniques for sickle cell disease
Discuss chronic transfusion and sickle cell disease
Understand new drug therapies for sickle cell disease!