The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community. Now in its fifth year, the meeting has grown in size and scope. Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients and advisors. We are pleased to announce the 2019 symposium will be hosted by The Sickle Cell Association of Texas Marc Thomas Foundation, the As One Foundation, and Carol’s Promise Sickle Cell Association. Our theme this year is SICKLE SIBLINGS: BONDED BY BLOOD, focusing on our chosen families and the warrior relationships that bring us together. Our 2019 agenda places heavy emphasis on becoming Expert Patients, while learning to advocacy, educate, and encourage ourselves and each other. Sessions include tracks designed specifically for adults, teens and young adults, children and caregivers, and warrior men. The agenda is designed by the sickle cell community with topics identified by patients, caregivers and healthcare supporters, ranging from “Parenting Issues from Birth to Adult” and “The Science of Sickle Cell” to “Sickle Cell Mental Health” and “Sickle Cell and College Life”.
Conference & Other Info
The AS ONE Foundation
The As One Foundation was established in 2007 as a non-profit 501(c)(3) organization to facilitate community programs both individually and in conjunction with similar organizations and to honor the memory of Devaughn Darling, who died prematurely of exertional sickling, a condition that can affect people living with sickle cell trait.
SICKLE CELL ASSOCIATION OF TEXAS MARC THOMAS FOUNDATION
Pastor Marc Thomas, Founder and CEO of the Sickle Cell Association of Texas Marc Thomas Foundation was born May 17, 1958 in Oakland, California. At the age of 3, Marc was diagnosed with Sickle Cell Disease. It was during Marc’s high school days that he first met Linda and she became his beloved wife.
CAROL'S PROMISE SICKLE CELL FOUNDATION
Carol’s Promise Sickle Cell Foundation was officially founded in 2017 to uphold a promise made by our founder to her mother, Carol to advocate on her behalf for a cure. It has since blossomed into so much more. Carol’s Promise is a community-based organization that is credentialed by the Sickle Cell Community Consortium.
REGISTRATION OPENS ON TUESDAY, MAY 15TH. Register now to reserve your spot. This convention will fill up fast. Remember, this is the only conference in the sickle cell community organized entirely by Warriors and Caregivers for Warriors and Caregivers. We welcome everyone living with sickle cell, warriors, parents, teens, and understanding health care professionals. See you soon!
Program Overview & Learning Objectives
This is an educational conference planned by and for consumers with sickle cell disease to address issues that are most relevant to consumers. Some of the latest research in sickle cell disease will be discussed as well as management of the most common complications including treatment options; gene therapy, transplant, transfusion, and new therapeutic drugs available (or being researched) for sickle cell disease. Speakers will discuss issues related to stress management, financial management, transition from pediatric to adult care, caregiver respite, rights & responsibilities in the workplace, men only sessions, women-only sessions, and other interesting topics.
The primary audience is consumers with sickle cell disease, adults and children, their caregivers, and sickle cell advocates.
After completing this course, you should be able to:
Review the most common complications of sickle cell disease
Discuss stress management techniques for sickle cell disease
Discuss chronic transfusion and sickle cell disease
Understand new drug therapies for sickle cell disease!
WANT TO PARTICIPATE? READ ON..
There are many ways to participate in the Convention.
REGISTER and join us in dozens of workshops, panels, and round table discussions. Share your experiences and your knowledge with your fellow Warriors.
EXHIBIT with us. This year we are excited to include an exhibition hall at the Convention. We welcome corporate, government, community, non-profit and Warrior exhibitors to rent booth space for the duration of the Convention.
THANK YOU TO OUR PREVIOUS SPONSORS AND SUPPORTERS